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March 2009

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March 21, 2009

Autism: Playing the keyboard - a self-posed video

When I was emptying the memory card today and moving over Zach's video into his folders on my computer, I was really surprised when I watched this one. I realized that he had figured out how to get himself on the camera. Usually, he's behind the camera, recording all the things that interest him. This time, he wanted to get himself on the camera and record himself playing the keyboard. I was so enamored by the fact that he figured out how to do this.

He set up the camera in his closet and fiddled around with it a little, but eventually got it just right. When you start to watch the video, the first 40 seconds are just getting it set up, so fast forward to the 0:40 mark to start seeing Zach.



Zach loves music. His appreciation for music started when I was pregnant with him. David would sit at his organ and play music each night to de-stress from a long day's work as a carpenter. I would sit on the futon (this was in our first apartment and about a year and a half after we got married) doing a cross stitch project or reading a book. As soon as David would start playing the organ, Zach would dance around in my tummy. He's always been fascinated whenever David plays the organ or keyboard, ever since birth and before.

He has a great ear for notes and enjoys listening to toys that have music. We've recently taken out the keyboards to allow him to explore his passion for music. Even though he only plays simple tunes now, he's always experimenting with chords and different combinations of notes. He has an even bigger keyboard in his room, hooked up to a stereo system, but the smaller keyboard is portable so that seems to be his favorite.


Enjoy!

-Erika (Zach's Mom)

March 20, 2009

Autism: Zach's sleeping bag trick & deep pressure

Zach is autistic and enjoys using his imagination. Like many autistic children, he likes to have deep pressure: being hugged tightly, being in enclosed spaces, being weighted down by things, rolling up in blankets, etc. You can read more about the effect of deep pressure here ---> Calming Effects of Deep Touch Pressure in Patients with Autistic Disorder, College Students, and Animals

He has a favorite sleeping bag that he sleeps with at night, curled up into and barely the top of his heads shows out of it. He recently figured out that he could roll himself up into it and keep on rolling on the floor.

Of course, he also loves bugs. LOVES THEM. So, you'll see some at the end of this video. They're his pill bugs, which he calls Doo-de-doo bugs.

After watching this video again, I had a craving for my Oma's German pancakes, so that's what we had for dinner. *wink*

-Erika (Zach's mom)

March 19, 2009

Autism: Bug Catching

We recently had a warm spring day and Zach had been home from school because of a stomach bug. I wanted to take him out to get some fresh air and to enjoy the warm sunshine. I took him to one of his favorite places to catch bugs - the church that we attend. He gets so excited each time we go to the church. He's been looking forward to the snow melting and receding away from the base of the stone walls out front and from the foundation of the church. He usually catches pill bugs and wood louse bugs.

Here's a video I took of him that day catching bugs:

Spring is almost here, which means more and more species of bugs coming out and he's counting down the days until the first day of spring....though I've tried to explain to him that the first day of spring and the first spring day are two entirely different things.

-Erika (Zach's Mom)

March 18, 2009

Videos from an autistic boy's perspective

About a year ago, a friend gave us his older digital camera. We weren't aware of the video feature on it until just recently. Since then, I've allowed Zach to use the camera to take videos of whatever his little heart desires. I love to upload these videos to my computer and then find out what it is that he chose to record. I enjoy seeing things from his perspective. It's like opening a gift each time I upload one of his videos.

I recently told my friend how much we've used this camera since he gave it to us, especially recently. But I wonder if he realizes how incredibly useful this has been for Zach. I feel like I've been given an opportunity to see through his eyes, to somehow see a glimpse of the world as he processes it. I'm not quite sure how to explain it, but this camera has been an incredible blessing in this regard.

So....all this to say, I've recently set up a YouTube Channel for Zach's videos because I think it's important to share these with people. It gives a little insight into a brilliant mind.

If you'd like to subscribe to Zach's channel, you can do so by clicking here and then clicking on the Subscribe button ---> The World of Zach

Here are a couple of videos that I recently posted.....

These videos are from the perspective of a 10 year old autistic boy named Zach. No, he's not an expert on videography...he's just using a point and shoot digital camera with a video mode to document the things he likes. Sometimes the picture is all over the place, sometimes it's blurry, sometimes I have no idea what he's trying to capture but it's all about what interests him and the world from his perspective.

Zach is autistic and he loves to catch bugs. It's strictly catch and release for him. His world revolves around bugs. He studies how they move, eat, live and then makes up his own songs to go with the different species he catches.


Check back often because I'll be posting on a regular basis.

-Erika (Zach's mom)

February 17, 2008

Jason McElwain.....an autistic boy changing lives

The story of Jason McElwain never ceases to amaze me. I'm often amazed, though, that the coach never saw his potential before the last game of his senior year. It makes me wonder how much of a high school basketball "career" he missed out on.

At the same time, though, if it hadn't been for playing those last 4 minutes in that last game of his senior year, how many of us wouldn't have been touched by the enormity of what this young man could do.

Every time I watch the video footage of "JMac," I get tears in my eyes. I see my own son in this young man and have hope that someday, my Zach will do something that will "wow" the rest of the world and show that autistic kids are bright and amazing, far beyond what other people see on the surface.

JMac is now releasing his new book and doing book tours.

You can check out lots of video footage on JMac by clicking ----> HERE

There's lot of good watching there.....you won't be disappointed.

Get some great art and support autism at the same time!

Dscn6968_2 If you're looking to get some great art and support autism at the same time, then you're in for a treat.

I just listed my first piece of artwork on Ebay yesterday and will be putting up a new piece every week or two.....and I'm hoping that Zach will also put some of his artwork up for auction, as well.

My family and my life are my inspiration for many of the things that I create. And because my family and life are my inspiration, I created this 16 x 20" canvas to benefit Autism Awareness.

As much as I feel connected to this piece of art, I didn't create this to hang in my home, but to hang in someone else's home. I don't know who that person is yet, but I know they're out there somewhere. This piece is available on Ebay here ---> "Love Rocks" on Ebay  - and 90% of the final auction bid will go to benefit  an organization that is "dedicated to empowering, supporting and educating families and friends of children with autism as well as individuals with autism by providing guidance, support, informational resources and family-oriented activities, in addition to financial assistance for medical, educational or professional services, treatments or programs for those with autism, while building a heightened public and professional awareness of the challenges faced, with emphasis on enabling those with autism to achieve independent living." (from autismsupportdaily.com)

Thanks for looking and make sure to check back for new auctions!

February 05, 2008

Diagnosing Girls' Autism

A couple weeks ago, I watched a fantastic video done by ABC.com  This video shows a little girl with autism and says that girls are harder to diagnosis than boys, as they often disguise the symptoms.

It's a fascinating, but also heartbreaking, video and just proves that more people need to be aware of what's going on. People also need to be more patient with children and families that are dealing with autism every day. This comes with educating people.

The more we spread the word, the more we educate people, the more we make people aware, the more we can work towards a better present AND future for our kids.

Diagnosing Girls' Autism

February 03, 2008

Great autism awareness items! Spread the word!

Tn_autismawareness_jpg_2AutismButtons.com
I ran into a local friend recently whose little guy has autism and it was good to catch up with each other on how our boys are doing. She and her little guy live in the next town over and is a little younger than my Zach.

She pointed to her van and I could see her bumper sticker. She told me that she found an awesome website with all kinds of autism related items that are great for making people aware. She sent me an email with the link to this site and I wanted to pass it along to all of you.

Autism Buttons & More is a great site with lots of items available to help spread the word about autism. There's buttons, bracelets, car magnets and bumper stickers, ID tags and SO MUCH MORE! This is probably the site with the MOST product available for the cause of Autism Awareness. I was amazed at how much was on here!

The prices for the products AND shipping are very affordable and I have a wish list that's already growing and I'll be putting my order in soon.

B001 The items on this site are great for passing around to friends, family, teachers, doctors, interventionists, etc. They make great gifts for the people that work with our children and I have plans to make this site my go-to place for gifts. This site has over 450 styles of buttons.....talk about finding something for everyone!

This site is run by a father of an autistic child. His passion is to educate, create awareness and to find a cure. I'm always touched by other parents that raise their voice to be heard when their children can't always be heard.

Check them out at: Autism Buttons

January 31, 2008

What Kind of World Do You Want?

AwarenessribbonI've heard from a lot of people recently about the video that you can watch to help support Autism Awareness and research. I'm always touched when people email me with things like this, telling me that they thought about me and Zach when they saw it. THIS is the kind of awareness that always touches my heart.

I checked in on the video and yes, it is legitimate.

You can view the video by clicking here:

What Kind of World Do You Want?

The cool thing about this video is that not only are you educating yourself but you're also helping to fund research.

*Each time* the video is viewed, the band, "Five for Fighting," will donat $0.40 to Autism Speaks.

Please take just 4 minutes out of your day today to watch this, to be educated, to be aware to be touched.....and then pass it on to others so they can experience the same and others can be helped.

November 12, 2007

Tasting the ocean.....

Dscn4537_3Last month, we took a family vacation to Florida. This was a big trip for the kids.

They've been on many family vacations before, but this was special in that it was the first time on a plane for both of my kids.

We were really concerned as to how Zach would take the trip. He was excited about all the bugs he would find in Florida, as it's been cold here and his favorite insect, moths, have been few and far between. His bug jars and net go with him everywhere.
Zach hates elevators. It's definitely a sensory thing for him. He doesn't like that weightless feeling. We were concerned that the feeling of a plane lifting off and touching down would set him off.

One of the best things about living in northern Vermont is that just about everything is "small town" and friendly. Our airport was awesome about setting up a field trip day for us to come up and walk through the process of checking in and boarding. We spent an hour at the airport and got to walk through the baggage area, onto the tarmac, through security, into the security room to see all the computers and monitor screens, behind the check in counter.....we were taken good care of and by the time we left, Zach was very comfortable with the thought of flying.

Dscn4528 We spent a couple days at the beach and, even though there weren't many bugs to find or fish to catch, Zach makes sure the bug jars and net go everywhere he does. Ya know, just in case.

Zach is not the type of kid to go running into the waves. He's cautious of water. The small pool in our backyard was okay with him. Not the ocean, though. It's too unpredictable. It took us over an hour to coax him to take off his shoes and socks at the ocean.

He finally got brave enough to touch the foam on the beach as the waves broke up and receded back. I thought that was really cute.....and then I realized what he was doing with the foam.

He would run up to the foam and bend down to touch it with his fingers....making sure that he got some of the foam bubbles on his hand. Then he would back away before the next wave came up to break on the beach. He would touch his fingers to his mouth to taste the foam.

I asked him what he was doing and he said, "It's salty!" Apparently, he was fascinated by the fact that salt water really DOES taste like salt!

Dscn4533 The plane trips were wonderful! Zach did AWESOME! No problems whatsoever. Chad, our coordinator, even created a great social story for Zach before we left and I think between that and the field trip, it made for an amazing experience for everyone.

Oh....and if you have a chance to ever fly with JetBlue, they're AWESOME! They were very attentive to every need that we had and they checked up on us throughout the flight. We even got to pre-board and the kids got to go in the cockpit, meet the pilots and get their "junior wings." One of the attendants even made sure to walk all the way down to our connecting gate to let them know we needed special attention. Zach thought the little TVs on each seat were cool, especially because he could keep track of the progress of our plane on the map, as well as the speed and altitude.

It was an awesome vacation and now the kids can't wait for another flight somewhere!

November 04, 2007

How can YOU make a difference?

***This post has been made STICKY and will stay at the top of my blog until the winner of the give-away is chosen on Thursday (11/8). Make sure to scroll down to see my newest posts....you don't want to miss anything! :) ***

I've had some big news brewing that I've been ITCHING to share with you all! Today is the day! It's finally here and I can FINALLY share it with you! Everything is up and running and ready to go! A while back, I shared a really funny clip on my Stampin' Mama blog that I found on YouTube that showed a hilarious peek at the die-hard world of scrapbooking. From that YouTube clip, I found out that an entire mockumentary had been made and put on DVD called, "Inside Scrapbooking" (put out by the twisted and genius minds at MockUTV). I was hooked and when I got my copy, I couldn't stop watching it and couldn't stop laughing at it!

Well......just recently, I was contacted by Russ Jones, the producer of the mockumentary. What he proposed to do amazed and shocked me and showed me, once again, that there are wonderful people out there that truly want to make a difference in this world.

Here's the clip, in case you missed it the first time.....and after you're done watching the clip, make sure to keep reading because I've got LOTS more to share.....AND give-away!


So....what did Russ propose?

He wanted to help my son, Zach, and I to make a difference in the world of autism. 

Starting NOW through January 1st, 2008, MockUTV is donating $1 from each copy of this awesome DVD sold towards a charity that is near and dear to my heart: Autism Support Daily

Did you know that one in every 150 children are diagnosed with some form of autism? That's ONE TOO MANY! And did you know that's only the number of children that are actually diagnosed? And did you know that many of these children "fall the through the cracks"? There ARE things that can be done about this and YOU can help!

And get this......you even get FREE shipping on the DVD! Talk about a win-win for everyone! This is the perfect gift for any papercrafter and scrapbooker on your Holiday wish list or even as a treat for yourself....and the best thing is, you're supporting a VERY worthwhile cause!

You can check out a bunch of great links on the MockUTV site:

120790227v5_240x240_front_2 Molly, the crazy and zany star of "Inside Scrapbooking," has graciously offered up a fantastic give-away in honor of the announcement of this great cause! She's giving away an awesome scrapbooking tote bag! How generous of her!

So, what can you do to enter in this give-away?

Just leave a comment here telling me what your favorite scrapbooking tool is!

BONUS: Spread the word on your blog or website, let us know about it (leave a link to it in your comment) and you'll get a bonus entry in the drawing! Spread the word!

We'll pick a winner on Thursday at 11 am (EST) and announce it here.

And this isn't the only give-away......we'll be celebrating and creating awareness all the way through, so make sure to keep checking back!

And make sure to stop on over to MockUTV to get your copy of "Inside Scrapbooking!" Share the news with your crafting groups, on any forums you're a part of, with your friends, relatives......help spread the word and let's make a difference TOGETHER!

Thanks!!!

-Erika

November 01, 2007

Autism on the Seas.....cruise in style with all your needs met!

Pix_logo_autismontheseas_2 If you've been looking to go on a cruise, but are concerned about bringing your autistic child with you, there's an awesome solution!

Autism on the Seas is an amazing cruise program put together by Alumni Cruises that puts together Autism group cruises. They specialize in travel for families and adults with autism.

Currently, Autism on the Seas is offering 4 upcoming cruises in 2008.

What amazes me about Autism on the Seas is what they offer for features. Check this out:

                  - Professional Autism Staff for the Group
                   - Autism Awareness Cruise Staff
                   - Professional Medical Physicians and Nurses
      
New!!   - Priority Boarding onto Ship
      
New!!   - Priority Disembarkation from Ship
      
New!!   - Private Muster Drill Area
                   - Special Dietary Accommodations
                   - Service Animals Permitted
 
                  
Access and Services for People with Disabilities
                   - Private Group Family Party
                
 - Private Movie Showings
                   - Private Sea Animal Bingo

 
      New!!   - Private Adventure Ocean Activities
       New!!   - Private Ship Facility Entertainment Sessions
                   - Special Adventure Ocean Child Grouping
 New!!   - Private Group Karaoke
       New!!   - Pool (water related) Activities
                   - Flashlight Scavenger Hunt
                   - Adults with Autism Social Gatherings
                   - Teen Social Gatherings
                   - Sibling Activities
                  - Parent's Play Time
                   - Private Dining Room
                  - Early Dinner Seating with group (Early Dining)
                   - Special Gifts
                   - 
Special Potty Training Provisions
                      - Special Children's Program Grouping Rules 
                   - Most "Special" Requests and Needs met
 
                   - All of the regular services and activities on board
                    Royal Caribbean Cruises
                    ...and more

Autism on the Seas has a great page on their site that shares reviews from past cruisers and also lists many of the services and activities that were offered on their recent July 2007 cruise. This list alone makes the service worth every penny! Cruising with an autistic child or adult could never be easier.

Things like:

  • Priority Embarkation - no lines, no waiting!!
  • Private Muster Drill Area - no crowds, no commotion
  • Priority Disembarkation - get off the ship first and find your luggage FAST!
  • Hand Picked Dining Wait Staff - WHOA!!! Talk about special treatment!
  • Special Menu Requests - For families with special dietary needs, this is HUGE!
  • Reserved Seating and Section for Shows in the Theater - makes it a truly enjoyable experience for all

There's so much more....you can check out a larger list of perks, see pictures from the July 2007 cruise and read cruiser reviews by clicking here: Cruise Review

ShopAutism.com - great site for awareness resources

Bracelet1165x45_2Do you have an autistic child or know someone who does? Do you want to help spread awareness? Do you want a way to start a conversation about autism, but need a little help?

ShopAutism.com is a site with various autism related products that not only help to spread awareness, but also benefits Autism Support Daily.

Asd_logo Autism Support Daily is a 501(C)3
charitable organization dedicated to supporting
and educating families and friends of
children with autism as well as individuals
with autism by providing:

  • Guidance 

  • Support 

  • Informational Resources 

  • Financial Assistance 

and

  • Family-Oriented Activities      


Carmagnet69x97 You'll find car magnets, lapel pins, books, bumper stickers and bracelets on this site....you can create awareness and use them yourself or purchase them as gifts.....all while supporting a wonderful organization with a great mission.




April 07, 2007

Autism TV

Left I was searching around online today and found this really great website: Autism TV

This website is an internet portal for websites containing videos and audio files on autism.

You can click on the different channels and audio files to find, listen to and watch some great information on autism.

One of the most talked about is Channel 5's Center for the Study of Autism's new video website which includes a one-hour video called "My Child was just Diagnosed with Autism?  What do I Tomorrow?"

For those that are dealing with a new diagnosis, this is a fantastic watch. Lots of great information and empowers parents to advocate for their children and points them in the right direction to get help for their children.

This website is great, also, for people that are working with autistic children, or that need a better understanding of relatives with autism.

April 04, 2007

Great Resources on Autism and a FREE Webinar!

Thompson69155 Well, I'm finding all sorts of great stuff today.

Brookes Publishing Company has a wonderful selection of books on Autism. You can find them by clicking here ----> Books on Autism.

Brookes Publishing has books on all kinds of resources: texts, guidebooks, curricula, videos and tools based on the best research in disabilities, education and child development. There's more than just resources on autism.

Brookes is having an Autism Library Giveway right now worth over $500. Click here -----> Autism Library GiveAway to enter the contest. This contest runs all the way through the end of April and they're doing a give away each week during the month of April (which is Autism Awareness Month). You can click here ----> Over $500 worth of Free Books! to see all the books included in this giveaway!

And while you're at their website, you can click here ----> Autism Webinar to learn more about the FREE webinar (web seminar) they're offering on April 18th. This webinar is on Understanding the Nature of Autism: Behavior and Brain Science. This webinar will allow you to see the world through the eyes of a child with autism - and discover what's behind often-misunderstood behavior.  You can register right on their website for the webinar and it's FREE! 


The Autism Calendar

Autcalogo_4Having your child diagnosed on the Autistic Spectrum can be really overwhelming for a lot of people. For me, I could sense that there was something happening with Zach's development and after reading some information in a magazine and then doing a little bit of research, I had a gut feeling that what we were seeing were traits of an Autism Spectrum Disorder. Zach was 13 months old at that time. It took us another 5 months to find a program in our area that could work with him and point us in the direction we needed to go for support. Intervention and programs have come a long way in the past 7 years since that time, but it's still not an easy thing to know where to go or who to turn to when you're told that your child falls somewhere on the Autistic Spectrum.

A lot of parents find strength in connecting with other parents that are going through the same things (or similar things) they are. There are many adults with autism that are looking to meet with other people that live in "their world."

The Autism Calendar is a great resource if you're looking to hook up with other people in your area. Not all states have listings, but most of them do. There's even Canadian listings for our neighbors up north.

Click here ----> The Autism Calendar  to access this calendar.

April 03, 2007

Welcome to Holland....

Family_041_2 3 years ago, I was going through one of my recent issues of PaperKuts scrapbook magazine, I read a wonderful article on scrapbooking a child with a disability or special needs. One of the pages had this article written up as the journaling. The woman that wrote it (Emily Perl Kingsley) has twin boys and one of them had Downs Syndrome. Ironicly, the woman that founded PaperKuts has two autistic children. She used this article as her journaling on a 2 page spread highlighting her autistic son and daughter. I love it!


WELCOME TO HOLLAND

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

by Emily Perl Kingsley

April 02, 2007

The bugs are back!

Zach_002The biggest reason we started the "Help Zach see the World" project was because the bugs were gone for the winter. Okay, well, MOST of the bugs were gone for the winter. Zach has a way of finding bugs no matter what season it is, it seems. We really thought this whole winter would go by and there would be NO bugs in sight whatsoever, but that kid has a knack for entomology. Every now and then, he would come home with something in his bug jar. Those little bugs were most likely woken up from their hibernation, I'm sure.

Since this past weekend, Zach has been in his glory! It's bug heaven here at our house! Flies were hatching out and Zach caught a total of 67 of them in his bug jars. I can't even begin to count all the bug jars that boy has in this house, in the van and outside. We had a bit of sun outside over the weekend, so the flies were all over the outside walls of the house and on our wooden walkway. Last week, Zach came home from school with a bilateral ear infection, so we stopped at the drug store in town to pick up some meds for him and while we were there, we found some new bug nets for him to use this spring. I was smart and got 3 of them, making sure to put two of them away in our bedroom so that we could space them out as he wears them out. (I learned the hard way last year when he went through one of his nets and we couldn't find a new one ANYWHERE....he ended up confiscating the net we use for the fish tank.)

Yesterday, there was a church supper after the service and the kids always look forward to this. I don't know which Zach was more excited about....the church supper or the fact that we let him take his bug jars to church with him. He sat there in the fellowship hall at the table with his plate of food and 4 of his bug jars piled on top of each other, making a tower. And yes, they were full of buzzing flies. And yes, right where every one could see them as they were eating. We're blessed to have a really great church family that try to understand Zach and interact with him. There were a bunch of kids gathering around him, checking out the flies and asking questions. (He actually did the same thing last month at the church supper with ladybugs he had caught in the windowsills in the classroom at church.)

Zach_010 When Zach came home from school today, he went right into the brush at the edge of our property and started turning rocks over looking for "Roley Poleys." I'm sure this isn't their technical name, but it's what he and the kids at school call these bugs.

He had a little bug jar with him...this bug jar was actually an empty plastic muffin cup container. You know the kinds that the paper muffin cups come in? He LOVES those...he's always asking for me to make banana chocolate chip muffins so that he can use the empty container for his bugs. So..........as he was turning over the rocks, it would turn up a BUNCH of these little bugs. He put some grass in his bug jar and pretty much scraped the bugs off the rocks and into his bug jar. He must have had about 30 in there!

Zach brought his bug jar in after he'd caught his fill and then sat at the table with it. He opened the container up so that he could see them better. He sat there singing and talking to them in the special "language" he's made up for the bugs he catches. He knows the names of these bugs, but he has his own special names for them, and special sounds that he says these bugs make. Often times, he tells us to repeat what he's said. For instance, pill bugs are "doo-doo-doo bugs". Gypsy moths are "tev moths." He knows they're pill bugs and gypsy moths, but these are the names he says they give him. He finds it so incredibly funny when we repeat back the things he asks us to repeat. He has such a wicked sense of humor.

Zach_011 We're all glad the bugs are back. We've all been waiting for this ALL winter long. Zach was so desperate for bugs that he even took to searching through our potted plants for aphids, and if you know anything about aphids, they're SMALL! Tiny! Miniscule! We've had dirt on the floor around those pots on more occasions than I'd like to remember.

Zach even has sister catching bugs now. Her favorite is the wooly bear. She comes home with a few each day and has a house for them...which they get out of on a frequent basis. It's probably good that she catches new ones each day. They replace the dead ones that we find in their bedroom. HA! And yes, I'm serious!

I never thought I'd be the kind of mother that would allow bugs in the house. Not that I'm a girly-girl. I'm nothing of the sort, actually. Far from it. A tom boy at heart. But I was never one to collect bugs (dead OR alive) and I've never been the sort to pick them up and study them either. Sure, I'll take pictures of butterflies and such, but I don't search for them and put them in jars. Zach loves them, though. And his sister is following his lead. There could be worse things. Much worse things. ;)

The way I figure it is this. Zach is probably going to be a brilliant entomologist someday. He also wants to see the world. It wouldn't surprise me if this boy ended up trekking through the jungles of South America, Africa, India......looking for new species of insects, taking pictures, collecting samples, etc. And I wouldn't mind following my boy through those jungles. :)

Get an update each time I post to this blog

Just wanted to let you all know that I set up a FeedBlitz account for this blog, so if you'd like to get my blog updates in your inbox each time I post here, there's a little box right under Zach's picture at the top of this blog where you can fill in your email address. It's important to make sure you confirm your FeedBlitz subscription when you receive the email from them. The instructions are right in the email they send you and all you have to do is simply click on the link in the email to confirm. SUPER easy. :)

Autism on the Seas......Autism centered CRUISES!!!

Pix_logo_autismontheseas_3 I'm part of a yahoogroup that provide free support to parents of children (all ages) with Autism Spectrum Disorder. Today, I got a post in my email inbox sharing a link to a group that organizes cruises for families and adults with autism. I got REALLY excited about this and wanted to share it with all of you. I'm sure there is someone else out there, like me, that will find this information exciting and beneficial.

The last 3 years, my husband and I have been on the Stampin' Up cruises. So many people ask us if we take our children with us. The answer has always been, "no." There's a few reasons for this. One of the biggest reasons is that it would cost a lot of money to take the kids with us on a 7 day cruise. These 3 cruises were something that we earned through my Stampin' Up business and were completely paid for by the company for each of us. What a blessing that was for us, since we would never have been able to justify the cost for us to go on these trips.

One of the other reasons that we didn't take our kids on something like this (if money was completely taken out of the deciding factor) was that it would be a difficult thing for us to take Zach on these kinds of trips. I think our daughter, Elise (AKA: Girly), would love a trip like this and would do very well on it. Zach is another story.

Zach is a curious little man. In some instances, he has NO FEAR whatsoever. But Zach is also a very dependent little man and we are fiercely protective of him.

One of the things about autism is that most of the time, when you look at an autistic child, there really isn't anything visible that would give away that there is a disorder. We've had many strangers try to interact with Zach in public places (in line at the grocery store, at the checkout desk at the library, building sandcastles at the beach, etc) and they're puzzled as to why he doesn't answer them right away, why he doesn't always acknowledge them or an answer the way they want him to and so much more. It's hard to leave Zach in the care of someone that is willing to be patient in communicating with him, that will take the time to understand him, or that is even willing to engage with him and connect with his world.

Because of this, we knew that taking Zach on a cruise would be a hard thing. The Stampin' UP cruises are wonderful and all, but there's a lot that goes on for demonstrators and their guests. There would be times that we would need to leave Zach in the care of someone else. While cruise lines have FANTASTIC programs for kids, we knew that the chances of them being able to meet Zach's needs would be close to none. The other thing that was made known to us as far as these programs on board go, is that the kids are not required to stay in the program. They have the freedom to leave at any time. The program workers can not hold these children in the programs against their will. That would be a major problem if Zach didn't want to be there and we weren't there to take care of him if he left in the middle of a program. There has also been times when Zach has needed light restraint in moments of frustration and communication breakdowns. We didn't want to leave Zach in the care of someone that might not be familiar with this kind of intervention.

Pix_enchant_ext So.......because of these limitations, we opted to go on these cruises as just a couple. I've often wished for a low cost cruise that wouldn't take up TOO much time, but would also cater to our needs as a family with an autistic child. WOW! It looks like they really DO exist!

After looking over this site, I am excited to start thinking about planning a family vacation like this!

Autism On the Seas offers cruises that meet just the needs we have! And for those of you with autistic children or adults in your family, I'm sure that they meet your needs, too! (We've cruised with Royal Caribbean before and they're AMAZING!)

          Autism Group Cruises
For families and adults with autism

Featuring

                        - Professional Autism Staff for the Group
                        - Autism Awareness Cruise Staff
                        - Professional Medical Physicians and Nurses
                        - Special Dietary Accommodations
                        - Service Animals Permitted
                         - Private Group Family Party
                         - Sea Animal Bingo
                         - Flashlight Scavenger Hunt
                         - Adults with Autism Social Gatherings
                         - Teen Social Gatherings
                         - Sibling Celebrations
                         - Parent's Play Time
                         - Early Dinner Seating with group (Early Dining)
                         - Special Gifts
                         - Most "Special" Requests and Needs met
                         - All of the regular services and activities on board
Royal Caribbean Cruises...and more 

Wouldn't it be amazing to get a group together that could cruise with their families and not have to worry about needs being met, about who's taking care of the kids and if they're qualified for it, about the siblings of our autistic kids being left out of programs, etc?


I highly recommend checking out this site ------> Autism On the Seas. Let me know if this is something you're interested in! I'm all for putting a group together!

April 01, 2007

Something BIG is about to happen!

Autism_stamp_set_21 Often times, as things are happening, we don’t see the big picture. We see the here and now…..because, well, it’s happening here and now. Sometimes we speculate what course things will take as time passes, but most of the time, we’re surprised to find that things went differently than we thought they would. Or we’re completely taken by surprise because we never even thought about where our paths would take us at all.

What you see today on the GinaK site is a great example of me not knowing what the big picture would look like down the road. This has all taken me by surprise.

When I was pregnant with my first child, I kept a journal in which I wrote letters to the precious little one growing inside my womb. Everything seemed to be perfect when Zachariah entered the world. As he grew, he seemed to hit all of his milestones early. We knew we had a genius in the making.

Zach started walking at 8 ½ months old. At around 9 or 10 months, we noticed that Zach started picking up some funny antics. We just thought that he was going to be the family clown…..just like my dad and my brothers. Zach would do things that would make us laugh, and in turn, he would continue his antics to make us laugh even more. At 11 months, Zach had some words in his vocabulary.  We saw things happening with Zach’s behavior  that kind of made us puzzled, but we really didn’t have another child to compare him to, so we thought it was just part of his personality.

At 13 ½ months, Zach’s world changed. His baby sister entered the world. The day after she was born, Zach’s small, but seemingly growing, vocabulary disappeared. It would be another 3 years until we heard him speak again. The behavioral quirks that we had noticed earlier intensified. He would spin around in circles for long lengths of time. He would turn his little match box cars upside down and spin the wheels over and over again. He would literally do this for 15 minutes or more at a shot. He would rock back and forth in his highchair over and over until we thought the force of it would knock it over. We would call him by name and he wouldn’t even look our way. Eye contact was no longer happening.

At first we thought it was his hearing, but after two sessions with an audiologist, we were told that his hearing was exceptional, to the point of being able to hear frequencies that most people can’t hear, which also made him more sensitive to sounds that normally wouldn’t bother us.

At 12 months of age, I could see Zach spiraling into a world of his own. I knew something was going on. When my daughter was born, it was obvious that he fit the criteria for a diagnosis of autism. It took us 5 months and a contact name from a Good Housekeeping magazine to find someone that could help us. Zach started early intervention at 18 months. He’s been in intervention since then.

He’s now 8 years old and we realize we DO have a genius in the making. We realize we DO have a perfect little boy. He still struggles with his vocabulary, but there’s constant progress. Zach finally became full potty trained just after his 7th birthday, something we never thought he’d be able to do. He’s a curious little man with a insatiable lust for insects, the weather and new places.

I look back on that journal that I kept before he entered the world and realize that I got SO much more perfection in this little boy than I even dreamed possible when I was pregnant with him. Sure, every day is a day in which Zach fights to connect with our world, and to try to get us to connect with his world. And yes, many of the dreams that I had for Zach before he was born have never taken seed.  In a way, you could say that as parents, we mourned the death of some of those dreams. But in their place, we witnessed the birth of a miracle. Both in Zach and in us. Dreams are still being made, but they’re different than what I ever imagined them to be. Some have become reality, others are still dreams. We’re working on those.

And now, another dream becomes reality.

A couple years ago, I lobbied a stamp company to create a set that would benefit Autism Awareness. Nothing ever came from lobbying. Back then, I didn’t see that the path I was had a much bigger picture that I couldn’t see at the time. And to think that only a little over 6 years ago, I was still adamant that I would never pick up a rubber stamp. Nope, I didn’t see the big picture at all! I started stamping in 2001, fell in love with it and have never looked back

Back at the end of November, GinaK approached me with the opportunity of being on their Senior Design Team. I was shocked and surprised, but jumped at the chance! Still, I didn’t see what was to come.

In the middle of February, I got to thinking about  April being right around the corner, which also meant that it would be Autism Awareness month. I was bummed at the thought of yet another April going by in which there wasn’t a stamp set that could benefit research, a cure or awareness. That’s when the thought hit me. GinaK!!! Why didn’t I think of it earlier???

I emailed Gina and proposed the idea to her. She emailed back just 5 minutes later, excited about this opportunity and said YES! I knew there wasn’t a lot of time to put something together, but Gina was VERY optimistic that we could have something in our hands in time for April 1st. One instance after another has confirmed to me over and over again that this was meant to be. Zach’s disorder, taking up stamping, having Gina’s and my path converge…..it was all part of the path. And it all came together, like the pieces of a puzzle, to create the big picture I see today.

Gina has been an amazing person to work with. She took a dream and turned it into reality. Never once did Gina doubt this dream. Since I first contacted Gina about this project, there has only been a month and a half to put this project together. I am amazed and in awe at how things have fallen into place.

It is our hopes that you will partner with us to make this dream an even bigger reality by supporting the cause of Autism Awareness and research. You only need to do what you already love to do. How awesome is it that we can join together as a community and bring hope and intervention (and someday, even a cure!) to the children and families that battle Autism everyday!

Zach has come a VERY long way in his 8 years, but it’s an everyday fight. We are blessed beyond belief to have the support, intervention and caring people to work with that we do. At a staggering rate of 1 in every 150 children being diagnosed, there are so many more children out there that deserve the same thing.

RIGHT NOW is the time for solving the puzzle, the mystery, that is autism. And right now you can have a part in this with us.

I’m excited to see the big picture that I know is in the works with this project. What a beautiful picture it will be!

March 31, 2007

Help Zach See the World!

I posted this back at the end of November of last year on my personal blog and the response has been overwhelming!

This project is still ongoing and we're all loving it! Please consider sending along a postcard for Zach's collection and help him see the world!

Let me introduce you my little hero: my son Zachariah:

Azach_1_2 Zach is 8 years old. Zach is also autistic. Scroll down to the post below this one to see a scrapbook page that I did on Zach a couple years ago.

We caught his autism early....at 13 months old. He's been in intervention since he was 18 months old, as it took us 5 LONG months to find a program and someone that could help us. Both Zach and the state of Vermont have come a LONG way since then.

Zach is now in second grade and is caught up with the rest of the kids in his class and is even ahead of some of them in some subjects. It took him until 4 years old to regain the small amount of words he lost at 13 months. His vocabulary still has a little ways to go, along with his pronunciation, etc.

Zach ADORES bugs......he would live outside catching bugs all day if he could. It wouldn't surprise us if one day he ended up working for National Geographic, trekking through the Amazon and the jungles of Africa discovering and researching new species of insects. He also loves to look at biology books and can tell you where many of the body's organs are and what they do.


Zach is also in love with the great big WORLD! He's fascinated by maps, topography, geography, etc. The walls in his room are covered with maps of Italy, the planets (he loves space, as well), the US, Vermont, etc. Just the other day, my dad, who is the greatest "Dumpster Diver" in the WORLD, saw that our neighbor had thrown out a perfectly good GLOBE of the world! In PERFECT condition! My dad pulled it out and brought it in for Zach. It even has the mountain ranges in topographical form on the globe! Zach has been ECSTATIC about it since my dad brought it into the house!

Anyway....along with his autism, Zach also has a lot of Obsessive Compulsive behaviors. Right now, he's having a hard time transitioning into the end of fall and the onset of winter. With his love of bugs (and he has bug jars EVERYWHERE in our house!), he's been really upset that most of the bugs have either died off or gone into hiding for the winter. My mom had a WONDERFUL idea to give Zach something to look forward to during the winter months. She got the idea from a movie she recently watched.

Zach loves the world.....he loves hearing about different places, loves to find things on the map (and now on his "new" globe), etc.

Mom thought it would be a great project to have him receive post cards from all over the world! We're planning on buying a brand new map of the world and putting it up on his wall. We're going to get a package of little stickers so that we can pinpoint where his postcards arrive from. I'm also going to keep all of his postcards in an album so that he can page through them and look at them whenever he wants.

But I need your help for this project! Would you be willing to send Zach a postcard? This is something he looks forward to each day after school. It would be such a blast for him to look in that box each day with the hopes of being able to "travel" some place new without even leaving our little town (though he's just ITCHING to get out there and see the world himself!).

So......whadda ya say? Want to help put a BIG smile on my little guy's face?

Zachariah Martin
PO Box 153
Ferrisburg, VT 05456

I have a running list of where our postcards come from, which you can check out on the sidebar over at my SunshineMama blog. :) Thanks in advance for ALL of your help! We'd love to get a postcard from ANYWHERE.....even if you're just down the road from us! Don't forget, he's also got a HUGE Vermont map on his wall, too! :)

Thanks!

-Erika

 

My Hero

Below is a page that I submitted in a contest last year. I didn't win, but when it came down to it, for me, it wasn't about winning the contest, but about putting my thoughts and feelings about my son on my page, along with some of my favorite and most precious photos of him.

My_hero_2_2

I've included the journaling from this page below the picture, as it's in smaller print and hard to read in the picture.

Journaling:

At first glance, one would see what looks like any ordinary 6 year old little boy. At second glance, one would see that this is not any ordinary 6 year old little boy. At every glance, though, I see my hero in an extraordinary 6 year old little boy.

Most people would find their hero in someone much older than themselves. They would look up to someone that has weathered the storms of life and graced the face of the earth far beyond their own years. They would look to someone who would wear the badge of wisdom learned through experience.

I have learned that at times, one must look down in order to look up to someone.

I look down into the most beautiful blue eyes one has ever seen, pools of wonder and mystery, accentuated by the longest and most envied eyelashes that one will ever lay eyes on. I look into the eyes of my dream baby. My 6 year old wonder child. My Zachariah. My hero, the one I admire and adore.

My little hero has had to endure more than most 6 year olds ever will. Indeed, even more than most adults will ever have to face. It is an everyday battle. Such is the life, the fight, of Pervasive Developmental Disorder/Autism Spectrum Disorder.

I didn't dream that I would have a child on the Austistic Spectrum. In fact, many of the dreams that I had for my little boy were so different than what has been handed to us over the last 6 years. Heroes fight for a cause. My 6 year old is no exception. He fights every day.

At 13 months old, I watched as my baby became lost in a world not of his own making. His mind became the bird that was caged. I watched as he sank deeper and deeper into a world that none of us could locate on a map or begin to understand.

And I have watched him fight to find his way out of that world, that cage, whatever is it that tries to hold him there, that tries to keep him from us.

Where some see a child with the vocabulary of a 3.5 year old, I see a child that lost all of his words at 13 months and then struggle to regain them, slowly but surely, one at a time. Where some see a child with speech difficulties, I see a child that has fought to learn how to speak all over again. Where some see a child that seems socially inept, I see a child that at one time cuddled and snuggled, shrink back and close himself into his world. I have seen this child fight to make contact with those in "our" world, but not a part of "his" world. To ask to hold the hands of strangers. Where some see a child that seems emotionally inept, I see a child from whom I waited almost 6 years to get my first kiss from, but oh, how sweet his kisses are now when they land on my cheek. Where some see a child still in diapers at the age of 6, I see a child that has struggled with and has started to master something most children conquer before the age of 2. And I don't think I've ever seen a child more excited about this feat. Where some see a child that doesn't seem to understand those around him, I see a child that fights everyday, through limited words and actions, to be understood by those around him. Where some see a child that seems to be oblivious to the things that go on right in front of him, I see a child that sees so much of what goes on that often is overlooked. I see a child that finds the beauty and wonder in the simple things. A child that is in touch with the greater and more important things in life that we often miss. I see a child that wants to be free from his cage. I see a child that fights to be part of something that seems so far from him.

I have seen this little soldier fight his way out of the hole, towards the light and into a world that is foreign to him and give his all and more to be a part of a world that he struggles to understand, and a world that so often doesn't make the effort to understand him.

The strength to fight, the will to endure the never-ending struggle, the passion for freedom, the courage to relentlessly pursue. These are the true marks of a hero.

This is my Zachariah. My hero.

At times, one must look down in order to look up to someone.

Welcome to Zach's World!

I've started this blog as a place to share our journey.

When my son started regressing into the world of his autism, there really wasn't a lot available to us in the way of information. That was only 7 years ago. It's amazing to see how things have come in the past 7 years.

I longed for any information I could get my hands on, I longed to hear the stories from other parents that were raising and nurturing autistic children, I longed for interaction and hope. It is my hope that this blog can benefit not only me (as an outlet for my writing and feelings) but also for those that are looking for hope, for connections with other people with autistic children, or just to know that there's someone else out there that is living this every day....just like they are.

I'll be moving over entries from other journals that I've kept over a period of time, so be sure to check back. I'll be backdating them from the date that I originally typed them up in my journals.

Welcome to Zach's World.